A Hope of Cure for Tyler’s Disorder

As a healthy and active 7-year-old boy, Tyler enjoyed playing basketball, soccer, tennis and golf. Just like most active 7-year-old boys, Tyler enjoys sports and playing outside.

In February of 2005 all of this changed. While practicing basketball skills with his father,

Tyler could not bring his arm in without it shaking uncontrollably. After multiple doctor visits and misdiagnoses, Tyler’s parents were told he had Dystonia. Those original shakes have become crippling m

uscle and body twists.

Tyler’s Hope for a Dystonia Cure is a foundation created to advance research and raise awareness about this disorder.

Dystonia is a neurological movement disorder affecting the central nervous system characterized by involuntary and often painful spasms of the muscles. The disorder currently has no cure and progressively robs one of the ability to control voluntary movements and even the ability to walk. The earlier that a child shows symptoms of Dystonia, the more significant those symptoms become — and it can happen fast. Within 9 months of that shaking arm, Tyler required a wheelchair and will likely be permanently disabled within 5 years of onset.

There still have been a few things you should know about Tyler and about his disorder by visiting him at www.tylershope.org – a foundation that is to help people to raise their awareness the disease, speed diagnosis and find a cure.